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Crohn's disease and ulcerative
colitis are two types of chronic illness for which support groups can
be extremely beneficial. As anyone who has inflammatory bowel disease
(IBD) knows, talking about symptoms like chronic pain, weakness,
diarrhea, and bleeding are not topics which are usually discussed at
social functions. Few people can understand the anxiety associated
with the need to be near a bathroom, which many support groups know
can be extremely beneficial.
Obviously a support group serving the
needs of people who have had surgery can be even more beneficial as
support groups are about people helping each other to meet the daily
challenges in their lives.
Fundamental premises of support
groups are that mutual or self-help groups serve two purposes: first,
people with common concerns can gain strength as a group by pooling
their resources, and secondly, people with a common problem can gain
individual strength by communicating with others who have
successfully coped with certain aspects of a chronic illness. Penny
Steiner-Grossman, author of Inflammatory Bowel Disease: From Bench to
Bedside (Baltimore: William's and Wilkins), states "People in similar
circumstances can give support and encouragement to each other, share
coping strategies, release negative feelings such as anger and guilt,
strengthen self esteem, and dispel social isolation."
WE STRONGLY RECOMMEND YOU CONSULT YOUR
LOCAL STOMA CARE NURSE FOR DETAILS OF ANY LOCAL GROUPS KNOWN TO HER. WE CAN ONLY
OFFER YOU NATIONAL CONTACTS HERE.
| BRITISH
COLOSTOMY ASSOCIATION
|
ILEOSTOMY
ASSOCIATION |
2 London Court
East Street
Reading
BERKS
RG1 4QL |
Central
Office
PO Box 132
Scunthorpe
DN15 9YW |
| Kathy
Richards - Director |
Anne
Demick - Director |
| 01189 391537 |
0870
7707931 |
| www.colostomyassociation.org.uk |
www.iasupport.org |
| |
| NATIONAL ASSOCIATION FOR
COLITIS AND CROHNS
|
UROSTOMY ASSOCIATION |
4, Beaumont House
Sutton Road
St Albans
HERTS
AL1 5HH |
Central
Office
18 Foxglove Avenue
Uttoxeter
Staffs
ST14 8UN |
| Mr
Richard Driscoll - Director |
Miss
Hazel Pixley - Nat. Secretary |
| 01727 830038 |
0870 770 7931
|
| www.nacc.org.uk |
www.uagbi.org
|
| |
NATIONAL ADVISORY
SERVICE FOR
PARENTS OF CHILDREN WITH STOMAS |
IBS NETWORK |
51 Anderson Drive
Darvell
AYRESHIRE
KA17 0DE
|
Northern General Hospital
Sheffield
S5 7AU
|
| Mr
John Malcolm - Secretary |
|
| 01560 322024 |
0114 261 1531 |
| www.patient.co.uk |
www.ibsnetwork.org.uk |
| |
| Stoma
support group |
On
Line Ostomy Support |
| www.iossg.org.uk |
www.ostomyland.com |
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