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Crohn's disease and ulcerative
colitis are two types of chronic illness for which support groups can
be extremely beneficial. As anyone who has inflammatory bowel disease
(IBD) knows, talking about symptoms like chronic pain, weakness,
diarrhea, and bleeding are not topics which are usually discussed at
social functions. Few people can understand the anxiety associated
with the need to be near a bathroom, which many support groups know
can be extremely beneficial.
Obviously a support group serving the
needs of people who have had surgery can be even more beneficial as
support groups are about people helping each other to meet the daily
challenges in their lives.
Fundamental premises of support
groups are that mutual or self-help groups serve two purposes: first,
people with common concerns can gain strength as a group by pooling
their resources, and secondly, people with a common problem can gain
individual strength by communicating with others who have
successfully coped with certain aspects of a chronic illness. Penny
Steiner-Grossman, author of Inflammatory Bowel Disease: From Bench to
Bedside (Baltimore: William's and Wilkins), states "People in similar
circumstances can give support and encouragement to each other, share
coping strategies, release negative feelings such as anger and guilt,
strengthen self esteem, and dispel social isolation."
WE STRONGLY RECOMMEND YOU CONSULT YOUR
LOCAL STOMA CARE NURSE FOR DETAILS OF ANY LOCAL GROUPS KNOWN TO HER. WE CAN ONLY
OFFER YOU NATIONAL CONTACTS HERE.
BRITISH
COLOSTOMY ASSOCIATION
15, Station Road
Reading
BERKS
RG1 1LB
Kathy Richards - Director
01189 391537
www.bcass.org.uk
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ILEOSTOMY
ASSOCIATION
National Secretary,
Peverill House,
1-5, Mill Road,
Ballyclare,
Co. Antrim, BT39 9DR
Anne Demick - Nat.
Director
0800
018 4724
www.ileostomypouch.demon.co.uk |
NATIONAL ASSOCIATION FOR
COLITIS AND CROHNS
4, Beaumont House
Sutton Road
St Albans
HERTS
AL1 5HHMr Richard Driscoll - Nat.
Director
01727 830038
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UROSTOMY ASSOCIATION
Buckland, Beaumont Park
Danbury
ESSEX
CM3 4DE
Nat. Sec: Miss Hazel Pixley
0870 770 7931
ua@centraloffice.fsnet.co.uk
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NATIONAL ADVISORY
SERVICE FOR
PARENTS OF CHILDREN WITH STOMAS51 Anderson Drive
Darvel
AYRESHIRE
KA17 0DE
Sec: Mr John Malcolm
01560 322024
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IBS NETWORK
Northern General Hospital
Sheffield
S5 7AU
0114 261 1531
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